The Health Sciences Library at Hospital for Special Care recommends the following websites for accurate and reliable information.
Areas of Specialization
Brain Injury
Brain Injury Association of America
Brain Injury Association of Connecticut
National Resource Center for Traumatic Brain Injury
Traumatic Brain Injury Information from Neuroskills
Neuromuscular
Amyotrophic Lateral Sclerosis (Lou Gehrig's Disease)
ALS Association
ALS Therapy Development Foundation
MedlinePlus: ALS
Muscular Dystrophy
Muscular Dystrophy Association
MedlinePlus: Muscular Dystrophy
KIDSHEALTH.org (Nemours Foundation), information for parents, kids, and teens. En español
Pulmonary (including Chronic Obstructive Pulmonary Disease or COPD)
American Lung Association
MedlinePlus: COPD
International Ventilator Users Network
COPD International
Global Initiative for Chronic Obstructive Lung Disease
Medically Complex Kids
Aaron's Tracheostomy Page (with links to related tracheostomy sites)
Adolescent Health Transition Project
American Academy of Pediatrics
Children with Spina Bifida - A Resource for Parents
Family Voices (including Spanish language links)
Hemi-Kids
Institute for Child Health Policy
Maternal & Child Health Policy Research Center for Children With Special Healthcare Needs
National Center for Children & Youth with Disabilities (including Spanish language materials)
Parents Helping Parents
Spinal Cord Injury
Yes, You Can! A Guide to Self-Care for Persons with Spinal Cord Injury, fourth edition.
Christopher & Dana Reeve Foundation
MEDLINEplus: Spinal Cord Injuries
National Spinal Cord Injury Association
New Mobility
Northwest Regional Spinal Cord Injury System/UW Rehabilitation Medicine
Paralyzed Veterans of America
Spinal Cord Injury Information Network
Spinal Cord Injury: Worlds Wheelchair Culture
Spinal Cord Resource Center
Cardiac
American Heart Association
Heart Failure Society of America
MedlinePlue: Heart Failure
Amputees
Amputee Colaition of America
MedlinePlus: Amputees
1.800wheelchair.ca resource guide
Asperger's & Autism Spectrum Disorders
CT Collaborative to Improve Autism Services
US Department of Health & Human Services
Centers for Disease Control and Prevention
National Institute of Neurological Disorders and Stroke
Autism Speaks
Autism Research Institute
Basic Health Resources
MedlinePlus for Health Consumers (including Spanish language materials)
NOAH: New York Online Access to Health Home Page (including Spanish language materials)
Library World OPAC index
Cerebral Palsy
Hemi-Kids
Medline Plus: Cerebral Palsy
United Cerebral Palsy
Complementary & Alternative Health Practices (Holistic Health)
HerbMed Database
MedlinePlus: Alternative Medicine
Disability Resources & Assistive Technology
Abledata
Advanced Wheels - Driving Adaptations
CT Assistive Technology
Closing the Gap (communication & computer accessibility)
Disability.gov - Connecting the Disability Community to Information & Opportunities
Disability Travel
Family Village
National Center for the Dissemination of Disability Research
National Clearinghouse of Rehabilitation Training Materials
National Rehabilitation Information Center
Rehabilitation Engineering and Assistive Technology Society of North America (RESNA)
VA Rehabilitation R&D
Rehabilitation Engineering Trace Research & Development Center
Trace Research & Development Center
Families and Patients: Staying Connected
Caring Bridge
Care Pages
Family Patient
Helping Hands
My Life line (cancer-oriented)
The Status (English and Spanish)
Living with a disability
Going Home
Discharge checklist (geared toward seniors, but helpful for everyone)
Guillain-Barre Syndrome
GBS/CIDP Foundation International
MedlinePlus: Guillain Barré
Parkinson's Disease
MedlinePlus: Parkinson's Disease
National Parkinson Foundation
Parkinson's Disease Foundation
Michael J. Fox Foundation for Parkinson's Research
Stroke
MedlinePlus: Stroke
National Stroke Association
Sports, Fitness, and Other Leisure Activities
Equipment
Invacare - Top End New-Halls Wheels Sportaid
Individual Sport
National Wheelchair Basketball Association
U.S. Quad Rugby Association
United States Handcycling Federation
Wheelchair Tennis
Leisure Activities
Challenged Athletes (Financial Support)
Horticultural Therapy Information
Race results & Calendar from Coolrunning.com
Blaze Sports
Challenged Athletes
New England Handicapped Sports Association
Northeast Passage - New Hampshire
Wheelchair Sports USA (WSUSA)
Travel
Ability Trip worldwide accessibility information
Armchair World
Emerging Horizons: Accessible Travel News
Global Access Disabled Travel Network
